A summer camp in Poland for kids with EB!
From 15th to 22th of July, the Debra association organized in Poland its annual Epidermolysis Bullosa Summer Camp, with the support of the Urgo Foundation.
Taking place in Łazy, on the Baltic Sea coast, this Summer Camp aimed at integrating, supporting, and providing comfort to the EB* community.
Around 50 participants attended this event, including EB patients and caregivers, both from Poland and Ukraine.
On the agenda, the kids and their parents had the opportunity to participate to a lot of activities:
- group and individual rehabilitation,
- meetings with doctors,
- trainings and practical advice,
- team-building activities,
- practical workshop with demonstration and tips about dressings changes.
For kids with EB, this summer camp was a great opportunity to make friends with other kids with this condition and to spend great time together. All of them were thrilled to experience all these activities and to live such a one-of-a-kind camp experience!
Since its creation, the Urgo Foundation has been committed to the fight against epidermolysis bullosa. In the future, our actions will continue to train healthcare professionals and parents with EB kids to the finest care, with one objective : to improve the quality of life of patients!
*EB : Epidermolysis bullosa is a group of rare diseases that cause the skin to be fragile and to blister easily. Tears, sores, and blisters in the skin happen when something rubs or bumps the skin. They can appear anywhere on the body. In severe cases, blisters may also develop inside the body, such as in the mouth, esophagus, stomach, intestines, upper airway, bladder, and genitals.