Since its creation, the URGO Foundation has committed to fight Epidermolysis bullosa (EB), a rare genetic skin disorder affecting many children around the world.
This condition causes blisters on the skin, which becomes extremely fragile and, at the slightest friction, turns into an open wound that do not heal.
The pain is beyond words for children, but it is also indescribable for their families.
The Foundation supports many initiatives— particularly in France, Poland, Colombia, Brazil and China —to provide treatment for this terrible disease, which is still too poorly understood.
Its aim ?
For one week, to provide them with comfort and support alongside healthcare professionals who are specialised in the disease (meetings, bandaging and care workshops, games, etc.).