Epidermolysis bullosa

Since its creation, the URGO Foundation has committed to fight Epidermolysis bullosa (EB), a rare genetic skin disorder affecting many children around the world.

This condition causes blisters on the skin, which becomes extremely fragile and, at the slightest friction, turns into an open wound that do not heal.

The pain is beyond words for children, but it is also indescribable for their families.

The Foundation supports many initiatives in the world to provide treatment for this disease, which is still too poorly understood.

Training for healthcare professionals

Donations of wound care solutions to better treat patients

Funding for special equipment to improve patient care

Training parents to provide daily care for their children

Communication of best care practices to physicians

Every year, the URGO Foundation supports the DEBRA association in organizing an “Epidermolysis Bullosa Summer Camp” in Poland, for children affected by the disease and their parents.

Its aim ?

For one week, to provide them with comfort and support alongside healthcare professionals who are specialised in the disease (meetings, bandaging and care workshops, games, etc.).